Do you know anything about VWM? (Vanishing White Matter disease)
My family has learned a lot about it since my daughter befriended a mother and son dealing with this disease. They have both endeared themselves to us with their continued smiles and enormous amount of courage through this whole journey.
We went to a little extra effort this morning to support mom, Bethany, and son, Isaiah. A little west of us (78 miles to be exact) there was a walk event…..
Isaiah’s Walk to Cure VWM. There was a very supportive turnout and we are so honored to have been a part of it. In Bethany’s words,
“If you do not know anything about Isaiah, he is a 4 year old boy living with a rare brain disease called Vanishing White Matter Disease. He is 1 of 129 people in the world living with the disease. VWM is caused by a mutation in the DNA, which is a result from the parents passing on mutated genes. Isaiah has 2 mutations in his DNA. It is believed he is the only person living with those two types of DNA mutations, individually and combined. We are doing this event to raise awareness and funds to support VWM research to find a cure for Isaiah and the other 128 people.”
Today we celebrated his 5th birthday……one he wasn’t predicted to see.
Change is commonly defined as “to give a completely different form or appearance to; to transform.”
For the photo challenge, I’m Changing a garment in 2 stages. For this post, I’m transforming a portion of it into something new.
This is a 19 X 11 triangle (you need 2)
This is where I cut my fabric from.
Sewing them right sides together, 1/4 inch seam, and leaving 2 inch space to turn right side out.
But first trim those corners.
I use a quilters pencil that has a blunt end to get my corners sharp.
After turning right sides out, iron and pin that opening for stitching so that it doesn’t slip on you.
Top stitch as you are closing that opening along the entire edge of the triangle.
This is how I chose to add ties to create my kerchief. Sew blanket stitch along entire triangle (no photos but look online for tutorials on that process) and then choose the crochet stitch of your choice.
My finished Head Kerchief created from upcycled fabric.
So I resisted the urge to photograph Chrome. Somehow the Trace Adkins song came to my head. And I really don’t like that song. No offense to his music or persona.
Anyhoo, here is my take on Monochromatic. This is one of my favorite creations that I have debated many times about selling. It takes 4 skeins of Homespun Yarn so most likely would cost someone a small chunk of change. Maybe you’d tell me if it stands a chance in the marketplace?
Am I allowed to ask questions in a photo challenge?
My husband had good taste and was also budget-minded when he had this shipped to me last week. It is a quilt top and it is entirely hand pieced. He is pretty good at finding the gems on Ebay.
Now the plan is to hand quilt this once I’ve added the necessary layers. The person who hand stitched this was clearly experienced. I have much admiration for their creation. But I have to wonder about the maker and how much time they spent doing their part and how Connected we’ll be once I spend an ample amount of time doing my part.
Sadly all I know of this quilt is that it came from an estate sale somewhere in the Deep South. And the only name signed on it once it’s finished is mine. I hope I can do it justice.
Someone once said, “We can only connect the dots that we collect.”